Thanks guys! I have to say that I am feeling a little better today. 1st I sent an email to Dr Andy Trotti at Moffitt and he emailed me back in 30 mins followed by a phone call by his secretary scheduling me to see him next wed. I was very impressed on how fast somebody of his stature responded to my email personally! It seems that he is eager and my situation excites him not makes him scared and nervous which is making me feel a lot better. I had my appt with the oral surgeon and for the first time finally had a good report that my teeth are absolutely perfect. I will be going in for a deep cleaning and getting the flouride trays next week. I am at ease with just going by whatever this specialist has and wants me to do. Anybody with his credentials has to know better than anyone on this earth. Basically get it done, eat better, live healthier, be positve and strong is my new way of life which is going to be a better defense than any treatment. I am going to try and work thru this without taking the feeding tube. I can spare to lose some weight....lol! If it gets to the point that its that bad then I will have it put in. Thank you guys for all your answers and input....Usually I dont get on stuff like this and I have so far basically wanted to be in the dark. I told my ENT just do whatever you think is right, with my neck dissection I told him I dont want to hear anything about it just do it. I was reading about my glossectomy and was totally convinced that I wasnt going to be able to talk, swallow or eat ever again normally. Which it was tough at first now I am perfect...well I cant whistle or do some little things that mean nothing. I do however wish he didnt have to sacrafice the nerves and take out the muscle when he did the neck dissection but he got it all out that was the important thing. Now I have to deal with numbness and pretty bad pain and stiffness for who knows how long. Anybody have any suggestions on exercises or therapy for the neck dissection. Should I be rubbing the scar tissue or doing any kind of neck movement? I have been putting mederma on my scar 3 times a day and it looks great! Nobody can believe that it has only been 2 weeks! If I didnt have an alergic reaction to the staples it would look a lot better. As far as whoever said I have to realize that its not stage 1 anymore since I had an infected node....not to be rude but I could care less if its stage 1 or 5 I just want to beat this damn thing...All I now is that it was still very small and only 1 node was infected however it showed extra capsular spread so that is why I am having the radiation! To the person that had treatment at moffitt who was your doctor??? Thanks again to everyone I will keep you updated....


30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"