Jim

I hear you loud and clear. congratulations on being able to swallow after a glossectomy and eat right away. With that track record you may not need a PEG at all. Heck, I made it through the first time with no PEG, no dehydration, 40+ lbs weight loss from 177 but just gritted my teeth and did like you are doing, But you do need to know that you are doing it the hard way my friend. Then again you are half my age and when I was thirty, I thrived on doing things the hard way. The biggest disappointment of the entire cancer journey was not even the cancer coming back, it was failing my barium swallow test and having to get the PEG. It is crazy, and not rational but true. One word of caution, you are unique in your experience and definitely not the norm, so tread lightly here on the board on the PEG topic. It is the best option for almost everyone. But as I said, reading your post really brought back memories - THANKS
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13