 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I have to contradict a little of what Charm said above where he said "The important thing is to keep swallowing no matter what. Everything else will come back in time."
After talking to several people I made mad because I was telling them that me not having the PEG MADE THE DIFFERENCE and then realizing that no matter what some people did during Tx they ended up with lifelong swallowing problems, I decided how wrong I was in putting it all on behaviors we can control because sometimes it doesn't matter what we do, to much damage is done.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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