You still have pain even after the surgery? Do you think that will ever go away? I am a week post-op and now am not on pain meds, but can not eat any solid foods as of yet. I know I consider myself lucky to catch this thing so early. I only lost a portion of my tongue and some off the floor of my mouth. I do find that talking alot it still really painful. Unfortunately I am a teacher and have to talk a lot. My first ful day back to work was today and I was an emotional wreck after another teacher decided to make an insensitive comment about my speech.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12