 Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | I am glad that you decided to post this on the open forum. I don't think as clearly right now with the pain meds and the fever and should have probably put it out there myself.
Christine I hope that you are correct about the twighlight method. I found some info on another site about PEG replacement that would indicate that the twightlight sleep is what they will do. Right now my fever is up to 101 so I don't know if they will do the switch or not.
I would welcome any one else's experience with having their PEG replaced. I was hoping that I would be at the point in my life where I would be having the PEG removed now, not replaced so that I can use it longer.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
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