Debbie, I have been where you are heading and pratically in the same order. THe main difference is I had surgery at Ohio State James Cancer Center. My Oncologist came into my room and told me, that he had gotten all of my cancer and I wouldn't need rads or chemo. Well, it wasn't long and I was being taken to the OR again and again for more tongue removal and biopsies. THis was began on Aug 3rd of 2007 after having been biopsied at 2 hosptals in Wheeling, Wva and at WVUniversity Hospitl in Morgantown , WVa..I had seen an Oncologist at Wheeling Hospital Park Hospital and he is the Dr that told me I should have rads and chemo before surgery. He was right on. I was sent to him from OSU for the rest of my surgeries and rads and chemo. The Dr told me his lineup and my schedule. First thing was to have myh teeth all removed , the rads and
Erbitux before going to surgery for radiation seed tongue implants. We completed that part of the schedule on ,no implants yet, on Feb 25th , I think, and admitted me on Feb 29th for implants. I was old I would be isolated for 3 days and surrounded by lead shields. Well , the 3 days turned into 6 and I wouldn't wake up. Arrangements were made to transfer me to a rest home, bt late in the afternoon the day before, I woke up to find my Dr sitting by my bed. I heard him say, Jim you are my miracle patient. I asked why and got the same anwer I still hear. Because yu just are. I guess I was spaced out and didn't want to come around. I can tell you, if you experience any of this, it won't be fun but a lot of pain daily, bt you can learn t o live with it. I still have a lot of pain and just put it on the shelf each morning as best I can. I have pain meds which I never take as ordered and am used to much of the pain part. Your body can adapt to some strange things. Anyway, put some weight on and eat as much as possible for now. I lost 70 lbs and look like a poor fish that has lost it's water surce for a couple of weeks. I am alive and living so I have accepted life as it is. As for food, gt a blender that is tough and liquify anything that sounds feasible and don't worry about the taste, the only bite you will taste is the 1st one. After that one, it is burn and eat anyway. This yu get used to also. Christine has been there too and has some good ideas for food too. I just imagine a meal and try it. Lots of cream of wheat, coco wheats, oatmeal, tomato soup over heavily butter bread, forget meat or anything that needs chewed. You are going to make it thru this stuff and be a long term survivor. If you need to ask me anything, just go for ir. My email is posted in my profile. I could add more, but you and anyone reading this has to be bleary eyed by now.... LOL Jim
