My husband, Justin is 60. DX April 10. He and I are waiting in limbo for tx to start. The Doctor called Tuesday and said they do not have to pull his teeth. Thank God. But they are making appointment for dentists to make dental trays for floride tx.
They are going to use Erbitux and Platinum Chemo with radiation. The treatment is for 7 weeks minimum. This was told to us by the ENT after his meeting with the oncologists/ radiologists. We have not seen those Docs yet? The ENT is the one that make DX. He told us that we would be called for an appointmnet to have a port and feeding tube soon. We have been waiting since Tuesday to hear from someone. He also has to go to the Dentist. They would call us to make the appointment.
We are in the VA system of medicine. No private insurance. So we are at their mercy. They seem to be caring and knowledgeable.
Justin has BOT, SCC Stage4, metasized to the lymph glands and spine. Probably Agent Orange we were told.

Is this curable or palllative treatment?

The waiting is the hardest. He is not loosing too much weight . Maybe about 10 pounds He eats good. However, he does not want to go anywhere or talk to anyone. No going to church or visitors. He likes to play poker. He seems happy when he does that. This is a huge poker room. No friends for him. I do not play poker or feel we have the money to do this but I also think he should do something he likes. He cannot hear good. I have to handle all phone calls, emails and faxes. I ask him to go with me to see my mama (82 years old) and he told me to go without him. Am I complaining? I do not want to go with out him 6 hour drive away...or feel that I should. I am getting so frustrated. I am doing all I can to make him happy, but this is hard for me too. Forgive me for being so selfish and complaining. I do not know what it feels like to walk in his shoes. Any ideas for caregivers. What lines do we draw? Or do we? Now I am sitting here alone with noone to talk to....glalaryan