Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Debbie, welcome to OCF. My cancer was the top of my mouth too and also in my cheek, 2 seperate spots at the same time. Not too many people om here have it in that location. Im glad you found OCF for help and a place for guidance.
My teeth werent removed before treatment started and they didnt make it thru radiation. I had alot of problems with them and could barely eat. You are lucky to have yours pulled first. I know right now you dont feel lucky at all but its much better to have them out now than later. Its sometimes embarrassing having no teeth, but you gotta look at the bright side, its only a temporary thing.
I just posted a long list of easy foods under the Eating/speech/swallowing/PEG heading. I think that will help you alot. How old are you? Do you have family and friend around to help you? When does treatment start? Not trying to bombard you with questions, just trying to help. Take a couple minutes to add a signature to your profile so its easier to understand your situation.
Welcome again, and best of luck. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |