| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Harley, welcome to OCF. I totally agree with David about getting to a comprehensive cancer center and seeing a doctor who is experienced with oral cancer. Radiation is usually a one time thing and it needs to be done right. Not everyone here gets radiation or has surgery, some have both and get chemo with the radiation to make it more effective.
If the ENT told you they saw no more evidence of cancer but the results arent back yet, then its not confirmed. That sounds like they dont have full info yet. Please get a second opinion and by people who are more familiar with this.
Please ask questions so we can help guide you. There are many very helpful people who have gone thru this successfully that can help.
Best of luck. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
Entire Thread
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newly diagnosed, where to start
| HarleyKenny | 04-23-2009 02:46 AM |
Re: newly diagnosed, where to start
| davidcpa | 04-23-2009 12:55 PM |
Re: newly diagnosed, where to start
| ChristineB | 04-23-2009 01:07 PM |
Re: newly diagnosed, where to start
| HarleyKenny | 04-23-2009 08:11 PM |
Re: newly diagnosed, where to start
| Pandora99 | 04-23-2009 08:53 PM |
Re: newly diagnosed, where to start
| davidcpa | 04-23-2009 09:04 PM |
Re: newly diagnosed, where to start
| Eileen | 04-23-2009 09:47 PM |
Re: newly diagnosed, where to start
| suzanne98 | 04-23-2009 11:53 PM |
Re: newly diagnosed, where to start
| wilckdds | 04-25-2009 02:45 AM |
Re: newly diagnosed, where to start
| August | 04-25-2009 04:55 AM |
Re: newly diagnosed, where to start
| HarleyKenny | 06-09-2009 05:29 PM |
Re: newly diagnosed, where to start
| ChristineB | 06-09-2009 10:50 PM |
Re: newly diagnosed, where to start
| JIM BEERS | 06-11-2009 09:54 PM |
Re: newly diagnosed, where to start
| August | 06-12-2009 06:04 PM |
Re: newly diagnosed, where to start
| EricS | 06-20-2009 10:43 AM |
Re: newly diagnosed, where to start
| EzJim | 06-21-2009 12:30 AM |
Re: newly diagnosed, where to start
| HarleyKenny | 07-01-2009 09:07 PM |
Re: newly diagnosed, where to start
| mightymouse | 07-01-2009 09:23 PM |
Re: newly diagnosed, where to start
| Suess57 | 07-03-2009 12:14 AM | |
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