| Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Harley, Quite disturbing to me is the fact that your radiation oncologist had to consult with an ENT re your Tx. My comfort level just hit bottom. Get to a Comprehensive Cancer Center ASAP: http://www.oralcancerfoundation.org/resources/cancer_centers.htmYour cancer is quite aggressive and quite deadly and needs to be treated correctly the first time by specialists that treat 100's and 100's of Oral Cancer patients a year not by someone who has to down in the "food chain" to be told what to do. Next he'll probably pull a book off the shelve and look at some pictures of his radiation machine control panel.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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newly diagnosed, where to start
| HarleyKenny | 04-23-2009 02:46 AM |
Re: newly diagnosed, where to start
| davidcpa | 04-23-2009 12:55 PM |
Re: newly diagnosed, where to start
| ChristineB | 04-23-2009 01:07 PM |
Re: newly diagnosed, where to start
| HarleyKenny | 04-23-2009 08:11 PM |
Re: newly diagnosed, where to start
| Pandora99 | 04-23-2009 08:53 PM |
Re: newly diagnosed, where to start
| davidcpa | 04-23-2009 09:04 PM |
Re: newly diagnosed, where to start
| Eileen | 04-23-2009 09:47 PM |
Re: newly diagnosed, where to start
| suzanne98 | 04-23-2009 11:53 PM |
Re: newly diagnosed, where to start
| wilckdds | 04-25-2009 02:45 AM |
Re: newly diagnosed, where to start
| August | 04-25-2009 04:55 AM |
Re: newly diagnosed, where to start
| HarleyKenny | 06-09-2009 05:29 PM |
Re: newly diagnosed, where to start
| ChristineB | 06-09-2009 10:50 PM |
Re: newly diagnosed, where to start
| JIM BEERS | 06-11-2009 09:54 PM |
Re: newly diagnosed, where to start
| August | 06-12-2009 06:04 PM |
Re: newly diagnosed, where to start
| EricS | 06-20-2009 10:43 AM |
Re: newly diagnosed, where to start
| EzJim | 06-21-2009 12:30 AM |
Re: newly diagnosed, where to start
| HarleyKenny | 07-01-2009 09:07 PM |
Re: newly diagnosed, where to start
| mightymouse | 07-01-2009 09:23 PM |
Re: newly diagnosed, where to start
| Suess57 | 07-03-2009 12:14 AM | |
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