Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Eric,
Sorry to hear you were subjected to such a question but sometimes I think people blurt out what they want to ask trying hard to not convey pity but rather try to express concern in their own way. You have been to the edge and back!
I saw a news story on tv the other day and there was a teenager that had 6 radiation treatments to his jaw when he was an infant and the jawbone never grew. People have made fun of him all his life and his mother has been fighting the insurance company for reconstruction literally all this kid's life. I really felt for him and marveled at his smile and thought how he shares our life in such a way while having no surgery (like me) and only 6 treatments.
My entire right arm is deep red with huge welts from a burn back on December 20 and the doctor says let it breathe but my wife won't even go out to dinner with me unless I put on a long sleeve shirt. I wore one yesterday for 2 hours and just from rubbing and sweating it durned deep purple, one of my favorite bands of old, was swollen about an inch above the regular welt and now the next day I have a four inch blister that will turn orange tomorrow burst the next day and then hurt a few days after that. When a child looked at me in the grocery store and started crying, the mother asked what in the world happened. I smiled and told her I cut myself shaving.
Wear your badge of courage proudly, you certainly earned it.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
|