OP Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | One week later and these drainage sites on my jaw continue to drain. There are two of them now. One of them takes over 2 ft of the gauze strip stuff to fill.
All I can accomplish in a day is to get up, care for the dogs, go to the IV for antibiotics, then to have the wound redressed and then home. In between I can sleep standing up I swear.
What also amzes me is that it felt so much better when we first opened it up and now it is just feeling the same every day. I wonder if there is a lull in the healing and then all of the sudden it will get a bunch better? Gee I hope so.
Even though I am trying to be strong about this and I know that it will get better it is easy to get a little depressed about this type of set back when I had been doing so well. It is affecting my progress with foods and just my general day-to-day progress because of no energy and a lot of pain. I have learned to speak up about the pain though.
Thanks for listening guys.
Patty
Last edited by Good1; 04-09-2009 09:27 AM.
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
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