I have been told recently by both a speech therapist and my surgeon, Dr Haakenslash, that I may be dependent on my PEG for nutrition indefinitely, depending on what everything looks like when the area is healed and the swelling goes down. It is all healing very slowly. Very glad I insisted on the 20 French PEG prior to my most recent surgery!

The basic problem is that the flap replacing the total glossectomy is merely filler and has no nerves or muscular movement (except for the tiny portion of original tongue left remaining), so it can't assist in the swallowing process. Here's an animation showing that:

http://hopkins-gi.org/multimedia/database/intro_250_Swallow.swf

Click on the 'Play' icon, then on 'Normal Swallow w/explanation'.

In my case, it's even worse because the flap portion in my mouth (aka mobile tongue) died, so I don't even have the filler there.



Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.