Sorry to hear that your mum has to deal with this.

Your mum should see a Speech Therapist who will check her ability to swallow and will work with her to help her to improve.

As you said yourself everyone is different, and unfortunately your mum has had a full glossectomy. That is a huge operation. To have nearly all, or all of her tongue removed and too try and get food down to swallow is something that she will have to be retrained in doing, starting with tiny baby steps. I know how tough this can be. She no longer has a tongue which does nearly all the work to process and move food.

It is not easy, and she will need professional help to do so. Some of us here started swallowing Food again with help from a therapist.

Please help her to see a therapist so your mum can get some assistance and hopefully start to move forward. She is probably feeling upset and withdrawn. A speech therapist is a really good place to start to get her on the road to recovery.

Best wishes

Karen



46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery