Senior Member (100+ posts)    Joined:  Sep 2008  Posts: 130  |    I called the cancer society and all they told me was that if I were in South Florida or near one of the teaching hospitals they would have more to offer.        
40 yr old.  Stage IV  SCC found left tonsil.  PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides.  HPV 16 pos.  6 weeks of cisplatin, 43 days of radiation.  73gy on each side. ND March 2, 2009 reoccurance dx'd Aug 19, 2009
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