OP Senior Member (100+ posts) Joined: Sep 2008 Posts: 130 | The update so far. The speech terapist really stepped up. She was walking out of the building as I was walking in so she got a full face shot of all of my swelling. As we started talking, I explained that I am in limbo. I have no appts. until the middle of April and I am really concerned that this is holding my healing back. She agreed. Long story short. She now has a list of my next Dr's appts. She will be emailing them (RO and MO) letting them know what she saw and what she suggest we start doing. I am to call the RO today and schedule a sooner appt. So we can get me refered to the PT clinic she works at. And in a completely unselfish move. In the parking lot, before we got into our cars, in between Florida spring thunderstorms, she quickly goes over the massage techincs I should have been doing this whole time, along with a quick and easy month exerice that includes popcycle sticks that should help with my bite. This lady is today my hero. I don't know if she will ever in her life need anything from me. But let me tell you now, buddy, all she will ever do is have to ask. I'm there. Period. Oh, and the massages, I have almost got my teeth to meet already.
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side. ND March 2, 2009 reoccurance dx'd Aug 19, 2009
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