Regarding info, I have found the best way is to get a copy of everything, esp biopsies and scans (sometimes they want to charge for scan copy on CD; tell them it is copy for referring doc out of town), then I make sure that each doc gets a copy -- Even inside the same hospital or clinic, the reports don't always make it to the system in a timely manner because 'filing' is often the least desirable thing for staff to do).

I recently sent a complete set of biopsies to the oral surgeon who did some for me last century -- I will likely never see the guy again, now living on the diagonally opposite side of the US, but it's for his info that the lesions we kept biopsying without positives for SCC finally grew a tumor (Fifteen years from first biopsy in Germany to actual tumor!).