Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | I also welcome you to OCF. I am sorry that you have to be here, but you will not find another place that will give you as much support and as many answers as you will find here.
Please discuss the PEG problems with the doctor also. With the sore mouth and throat from radiation, the PEG is the best way to make sure that your mom gets here nutrition and fluids.
Please do not allow her to quit the radiation. I wanted to quit mine also and I stuck it out. I am very glad that I did. I would not want to have another recurrence. Especially if I knew that I did not do everything that I could to prevent it. It is very hard to get through it, but luckily your mom has you for support to help her.
Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
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