Charm i am intrigued!!!! Rob had his PEG fitted and his first feed about 4 hours later.Why have you got a drainage bag?whats it for?If you are in hospital why aren't you getting IV fluids to keep you hydrated and fed?
I am not amazing charm lol i just loved him,and his drinking habits which i considered to be just heavy social drinking ,were part of his every day routine.It was only when he couldn't drink that i realised he was dependant.When he went into the hospice,they gave him a small beer fridge in his room,and NEVER attempted or suggested that he shouldn't enjoy a couple of beers every evening,in fact they positively encouraged it.I was amazed considering how much morphine he was on,but it didn't seem to cause any problems to him at all,and even gave him a sense of normality.Perhaps if i had realised that the alcohol and drugs mix wasn't as dangerous as i thought i wouldn't have confronted him so much and we wouldn't have had so much conflict.It just used to baffle me how he could sit with a bottle of beer when every mouthful caused him so much pain.I think now that it was his own personal way of sticking two fingers up to his disease,and when all said and done horses and stable doors came to mind.
One thing it taught me was, not to be so judgmental.At the end of the day if it had been me with his disease ,especially in the last few weeks,i think i would be needing a few drinks to get me through.


hope you are home soon

love liz