Steve, maybe they have an idea of how to help. It was the lesser known Hospital that had the best treatment plan for me. But of course, I was too hard headed to listen until I really needed them. I owe them my life.

Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here