I am so sorry to hear what you are going thru. I am responding because our family is going thru much of the same. My step-dad was 1st diagnosed in Dec. 2003 with SSC to Right Lower Lip. At that time he had V Wedge Resection and Closure. On Jan. 6,2004 it was discovered per lab a wider margin was needed. On Jan 9 wedge resection with excision with slight advancement and suprahyoid neck dissection. Path revealed clean margins and no mets.Nov.21,2006 back to the Dr. with s/s of reoccurence? Dr. states Cervical Inflammatory Infection to neck along margin of mandible with fullness and thickness noted. ABT initiated. May9,2007 bx done. Results:Recureent invasive SSC lower lip into facial soft tissues. Radical neck disection with peck muscle flap to L side,PEG,Radiation daily x 40. Scans clear. Nov.2008: Reoccurence. Large tumor under chin involving mandible. Chemo started Dec.2009. Taxapere & 5FU every other week. Pump started on Mon, takes home over night,ect... Erbitux every other week. The Erbitux is now making him very sick. The tumor is shrinking. However, now he has episodes of bleeding from the nose and mouth. The Chemo was "pallitave". All Dr.'s stated it was that or taking out his jaw,trach,another feeding tube,ect...He is having difficulty with increased Potassium. The Erbitux did shrink the tumor! He goes to the Oncology Surgeon Mon. If it is major reconstuction sx he states he will not do it. So, Mon. will be decision day.
Your in my thoughts and prayers.