Bonnie,

The only things that are similar between your daughter and I is that we are both very small. I am only 5 ft and weigh 97 lbs. I was heavier pre-surgery, but I have maintained this weight since Oct so it may be my new weight. I take vitamins and watch my nutrition and so far so good. Encourage your daughter to take in as much as she can pre surgery/treatment. Have they spoken with you about a PEG tube? I had one installed before I started chemo prior to my surgery and it has been a blessing to help me to keep up my nutrition even though I try to take in as much as I can by mouth.

My cancer was in the floor of my mouth and my recurrence was in my tongue, but they did remove my left mandible and I have a flap replacing my tongue. They so far have been successful. It is quite an adjustment, but as I am adjusting I am feeling more comfortable trying different foods, speaking and interacting with folks outside of the cyber world.

Good luck to you and your daughter. She is lucky to have you and you have found a wonderful resource here for support and information.

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace