I found this site a while back and have been reading but I guess it's time to actually join. My daughter who is 33 this week was originally diagnosed in September 2006 with SCC of the upper maxillary region and had first surgery early October that year to remove 7 teeth upper maxillary as well as bone, as there was invasion to the bone then. No radiation prescribed at the time as the Head and Neck Surgeon did not recommend it for her then. She has a obdurator prosthetic now.

We made it 2 years and 3 months with clear CT scans and follow up. Last month she went back to her doctor to have a small node under her prosthetic looked at. Biopsied and it came back as dysplasia so laser surgery was performed about 3 weeks ago. Surgeon took a lot more tissue then was planned and pathology came back that there was cancer there, so here we go with recurrence. After laser surgery had another biopsy of a second area and it came back as cancer. So now we are getting ready for our second surgery to remove the entire upper right jaw and the hole into the roof of her mouth will be exponentially larger. Will be planning on a new obdurator to begin with. I really fear the flap surgery even for reconstruction because my daughter is pretty small. She only weighs 90 pounds and I don't believe she would do well recovering but who knows what God has planned for us. Just rolling with the punches. Waiting on new CT scan and visits with remainder of surgical team, prosthedontist, etc. Any one have any other information that may have gone through this type of surgery. Need all I can get.