[quote=daughterkel] Also, how could I find out how to find a CCC? [/quote]
Where do you live, or what large city are you near? Perhaps posters here could offer recommendations based on their experience.

You could start with the institutions that belong to the National Comprehensive Cancer Network -- an alliance of 21 cancer centers across the country that offer state-of-the-art treatment. Every year, the NCCN publishes treatment protocols for many types of cancer, based on their stage and spread (if any). You can find the 2008 head and neck cancer information here.

Additional information on treatment centers is available here on the main part of the OCF site.

As most commonly used here, the phrase "comprehensive cancer center" or CCC refers to an institution that brings physicians and other medical personnel from a variety of specialties together to consider each case and make treatment recommendations. This ensures that the doctors are working together and are on the same page, rather than requiring the patient to find a surgeon, then find someone else for radiation therapy, then find someone else for chemo -- and then hope that they will all talk with each other. Because this type of cancer can affect so many important functions, communication and trust among the medical personnel are critical.