We are hanging in there, thanks for the prayers. It is getting harder for Neil to breathe as he has a tumor on the left side now also. His lungs are clear but he has alot of pressure on his esophogus from the neck tumors and the large ulceration on the right side is getting deeper. I am trying to have his Dilaudid decreased since it is causing so much agitation and confusion. He sleeps most of the time but when he's awake he tries to escape from the bed but cannot stand up on his own. I'm so afraid i will turn my back and he will get out of bed only to fall and get hurt. The constant worry is exhausting and he is increasingly mad at me. I just really wish the last days we have weren't filled with so much pain and worry. I would love to have one more coherent conversation with him-it's hard to remember being able to talk to him and have him understand me. I hate this disease.

Sue