Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | Me too Pete. I was wondering the other day why someone has not came up with that yet. It is difficult to explain to people that I can not eat a lot of things due to the flap. It's not their fault, but as soon as I mentioned taking some foods by mouth they all think that I can have a whopper or something I guess. At a church dinner last night they had a buffet, but I had cream of celery soup. It was very uncomfortable for me to have people almost try to force different foods on me when I can not eat. It was also hard because people want to talk to you and expect answers while you are eating and I have not reached the point where I can do that. If I open my mouth while eating, I wear my food. I don't think I will attend another dinner for awhile.
Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
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