01 i had treatment and been normally fine.
in 06 i had a severe head injury.

i recently had neurology testing of my arms and electrical tests aren't right, so blood tests were done. they are normal.

the doc says, it isn't ALS. he doesn't know what the problem is and suggests no treatment. he discounts my head injury and supposes that radiation during cancer treatment messed up nerves in my neck.

i read some online articles (including those on this website) that say this can happen, but is rare.

maybe someday i'll know what's going on.. maybe i won't. thank goodness its not ALS.

i would be interesting to hear\read more about radiation damage to neck nerves.

i've been having my carotid checked routinely.

cu,
larryb


'01 diagnosis.. jaw hing and base of tongue. surgery not possible. JHU used radiation and chemo to seemingly rid me of the beast. peg for about 19 months. 100 cases of 24 cans of liquid food. 9 months eating therapy. 3x esophagus stretches. non-smoker. previously a social drinker.