 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF. Im not familiar with the radiation damage you are posting about. Even though we all share the oral cancer diagnosis, its different locations and treatments are all individualized. Most have done chemo/rad/surgery.
Please update your signature to explain what kinds of treatments, what your stage was, etc. Read other people's so you can get a feel for what info people put there. Its very helpful when you ask questions so the person trying to help knows something about you to help. There is also tons of info on the main OCF site and a search there and on the forum.
The biggest radiation after effect problem I have is trismus. Sorry I wasnt more help.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
