Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Carol, It would be a pretty small group! I would check with the hospital social worker, then try the support groups page in the newspaper. You might find some "rogue" H&N patients or survivors in the mix. I have also advised my head & neck surgeon that I am willing to work with patients one on one but after 6 years, I haven't had any takers. I do work with patients directly from time to time - just not from the hospital where I was treated. It could be a risk management issue or they wish to promote their own in-house therapy. Other than the first (and probably last) OCF Las Vegas reunion, I have run into maybe 6 OC survivors in the past 6 years just out and about.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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