 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Carol
Sleeplessness is very common with OC patients and their caregivers. You are a wonderful, loving, caring mom that any girl would love to have around. Its probably pretty tricky trying to find where you fit and and can help her right now. As a mother, we all want to shelter our children. Im sure she appreciates you more than you can see right now. Everyone is scared by this and emotions can run high.
Im positive you will be able to help others here when the time is right. At this point you already know much more than people just starting out. Dont forget, OCF is for caregiver support too. I was the patient, would have loved to have a caregiver but wasnt lucky enough for that. Dont know how I would be as the caregiver, hope Im never in that situation, its not an easy job for anyone.
Hang in there. We are here for you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
