 "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | Hi Brittany,
I'd like to see information on current research and studies, obviously, but also information on the day-to-day stuff that we talk about here. Things like recommended foods when eating is tough, tips for managing PEG tubes, trachs and whatever else the docs throw at us. And a few 'feel good' stories about survivors would be great. I also think some stories about caregivers and what they go through, coping tips and that sort of thing would be great.
Just some thoughts off the top of my head...
- Margaret
Nice to see you 'onboard,' btw.
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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