Cecilia

The road to recovery is more like a labyrinth than a super highway. Just like when you turn a corner in a maze, you can find yourself heading back in the direction you started from, taste and saliva can (and in my case did) fluctuate wildly. What was most frustrating to my caregiver wife was similar to what you are enduring. At about 2 months after radiation over, I could eat almost anything, including steak, then a month later I was back to soups and soft foods and couldn't taste anything again. Foods she had prepared were now inedible for me. I tried Zinc tablets on my doctor's advice to restart the taste buds, but it did not help me. You may want to at least discuss that option with his doctors. It was not until a full year had passed after the radiation before the seesawing of saliva and taste stopped. It is much better now, but nowhere near pre-cancer. One last suggestion: go with him to his doctor's appointments to make sure these complaints are heard and evaluated by the doctors and take notes on their responses. I was amazed at what my wife's notes said about doctor's advice compared to what I had thought I heard at the follow ups. Good luck.



65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13