Hi all,
We need help.

It has now been 12 weeks since he finished the treatment radiation.
A few weeks back he was fine, his taste buds were getting better and his mouth was quite moist, all seemed good and we thought we had turned a corner.
But 4 weeks ago, the dryness came back, and for the last 2 days the horrible salty taste to food has come back. the consultants seem to dismiss it and say he caught cold and it will come back. However it seems to be getting worse not better.
He is also getting terrible pains in the neck in the scar area. The muscles seem incredibly tense to the touch. It is odd, the outside skin is numb, so if I touch him he can't feel it, but under the skin it hurts. The pain makes lean to one side and walk crooked.
I have read about the tast and saliva loss after treatment, but not that it comes back then goes away even worse so long after treatment.
Has anyone experienced all of this?
Thanks
Cecilia

Last edited by Cecilia; 01-07-2009 04:12 PM.

Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear