Thanks Christine - I am going to read Brian's story when I finish this reply to you. So far, I haven't found anyone with the late stage that I have, although I'm sure there are many. I would love to read their story and outcome. Is there any easy way of finding/searching for people on the site that are in the same stage as I am? We did get a second opinion from the Stanford Tumor Team.

CG to H, 68 yr male, DX 10/27/08 w/BOT, Grade 2, T4/N2/M1 (neck, lung, midsternum) stage 4C/inoperable & incurable at this point as it is considered systemic. Dec 08 - Feb 09 had 7 treatments of chemo (taxol & carboplatin). 9/10/09 DX w/recurrence, MRI on 9/17/09. I STILL FEEL & LOOK GREAT :-)