Well, a few weeks ago I learned I've got metastasis to both my lungs and pleura. On the left I've got a pleural effusion as a result. The tumor board at my CCC here has determined that surgery is not and option and neither is radiation.

My doctor basically told me at this point we could treat it but not cure it, and went on to tell me I should go about doing the things I've always wanted to in life.
I'm 'only' 41 and I've got a wife and 4 kids to live for, so I'm not ready to just lay down and declare this fight over. I've moved to a new M.O.. He doesn't paint any rosier of a picture about prognosis but he understands my willingness and desire to fight this thing and is willing to help me that way. He's also connected to a couple of the major centers and may be a link for me to get into one of those.

He sent one of my archived cancerous tissues to a lab to confirm HPV as that is suspected in my case (non smoker or tobacco user). If it's positive I guess there is a clinical trial I may be eligible for.

I'm on Carboplatin, Erbitux, and 5-FU. After two more cycles we're going to scan again and see if we're making any progress. That will determine what we do next and I can't even speculate at this point. Just trying to be strong and not accept this as a death sentence.
-Steve


Age 41 - Stage 2 SCC tongue Dx 2/06. Cisplatin x3, IMRT x35. Mets to neck node discovered 7/07. RND 40 nodes removed, margins not clear. Cisplatin, Taxotere, 5-FU Fall 07, then IMXT/Erbitux for 7 wks. Inoperable mets to both lungs and pleura Dx Oct'08. 4 cycles Carboplatin, Erbitux, 5-FU so far.