Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | Sophie,
I also had SCC flor of mouth and the surgery that you describe with the neck dissection. As you can see in my signature, my cancer recurred two years later. From this site I have learned that follow up PET/CT's are done. My original oncologist looked at me one day post radiation and said "you don't need me anymore." I never had another appointment or PET/CT. I feel this was a big mistake. It won't happen this time - I will insist on follow up testing.
I say get the second opinion, learn all that you can (this site has a wealth of info), and insist on followp testing - yes some of it is visual, but by the time my second tumor was visible it was over 3 cm.
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
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