The problem isn't that I have low blood pressure, it's text book when I'm sitting or laying down. The problem is that it drops like a rock whenever I stand up, the lowest on record that I have is 78/52 and they had to stop the test at that point, but it was still going down. It took about 10 minutes to get to that point and my pulse during that time shot up from the mid 80s to 136. So, it's an non-autoimmune issue (something like neurocardiogenic syncope except I've never actually fainted from it yet) and unfortunately there's no clear cut treatment method because not much is known about it - it's all trial and error which is the stage I am in right now!


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****