Don't be afraid to ask for second and third opinions...also take yourself to a cancer center if you can. They have more people that work with cancer pt's.
Lots of real good info here. Ask questions of your Dr and the folks here and try to keep yourself informed. We've all walked in your shoes or next to them so we know where you are.
Best of luck

Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010