Thanks for the input, they had given us 100 grams (2 - 50 gm jars) and so far I have used just about one of them. I have only been using it on the "open" areas three times a day. We have gone back and forth on taking it off between applications because of all the bleeding so sometimes I would just apply more over the top and to the areas where it had slid around. It does look better today, yesterday I would have said the area was about 3"x8" and today is a little more irregular shaped but the main area probably 1.5"x6".

I know when we first just used the Aquafor, I wondered if that was just making it worse but think that was just the lingering effects of the radiation.

Was curious about this "bowlus" thing, my wife said that it was a plastic thing that they would tape on her neck between her neck and the mask. I assume this is a standard thing to help direct the radiation but just sounds kind of strange. Did they use something similar on your husband or Angel are they using something like that on you?


Tom-CG to wife, Pam 46@dx
Stage IV Tongue Cancer T2N2C
Dx 6/08, Surgery 7/08, 3 nodes positive
9/08 33IMRT/7Carbo/Taxol
4/09 node biopsy positive, mets to lungs/stomach
5/09 Cisplatin or Cis/Alimta study
6/09 Cis/Taxotere
9/09 Taxotere
1/10 Xeloda
3/10 Cetuximab weekly
6/29/10 lost battle