I would suggest a second opinion if you haven't already done so. Everyone is so different but 4 yrs seems like along time to have severe pain. I am 1 yr out of surgery and have moderate jaw pain. My ENT tells me that everyone is different so time will tell what is instore for me. I hope that he will some comfort.

Steven, I can so relate to what your ENT said. My ENT also told me to suck it up and get on with your life. I guess people live with pain everyday from different situations. But it is nice to have this site to refer to and get support. We all somewhat understand what one another is going through.