 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
JT
First, Im very sorry for the loss of your father in law. Im sure its a difficult time for your family.
I am very similar to you with the trismus and dental issues. My opening has gone from 4mm to 14mm. I have done 52 HBO dives with 18 more to go. Physical therapy is what has enabled me to get to the 14mm opening. But, Im in the same boat as you are.....how can dental work be done when you cant open your mouth. I have gone from specialist to specialist trying to find help to no avail. I have seen ENTs, oral surgeons, plastic surgeons, speech therapist, physical therapist. You name it, Ive gone there for a consult.
I am very anxious to hear if you have any different outcome or resources than I have had.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
