 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | As you know I didn't have the Peg but one thing we all have in common is the recovery and we all have a very hard time gaining weight post Tx and that can easily last a year or more. Peg or not, our bodies need many more calories than "normal" during our long protracted recovery and I for one don't think our team of doctors have a clue on this topic. I constantly give my doctors at Moffitt my experiences and also share this site's experiences in hopes that it may help others yet to come. I occasionally get an e mail from one of my cancer docs asking me what my experience was with a particular issue and it gives me comfort that he may pass that on. Perhaps because Moffitt is a teaching hospital I have found them very receptive to feedback.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| 
