OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Recently Ive been to alot of doctors for second opinions, they all must poke around my mouth and show their trainees too. I now feel a tiny fragment from what I think is the top L molar that was removed before chemo/rad last year. This has been irritated by all the poking around and also by doing physcial therapy to stretch my jaw.
Last week I had a hard time clearing my L ear for HBO, its always the L side that gives me problems. Anyway, I wasnt able to swallow as easily as I had been doing and noticed this progressively getting worse over the weekend. By Monday morning I could barely swallow at all. Could be many reasons, had to turn on the heat cuz it got so cold, started using my fireplace again, just plain old infection that went to my throat. Who knows.
My ENT scoped me and said throat is swollen and gave me predisone to fix it. Said it should work in 24 hours. Told me if its not better by Fri. then I need to go back into hosp. for IV steroids which is inpatient. Last time he gave me a deadline, I got stuck at the hospital for 10 days before they let me out. Needless to say, Im pretty miserable dreading another hospital stay since my throat hasnt improved much at all.
Now, since Ive skipped HBO and PT, my mouth is back to 4mm opening. Ive lost everything I worked so hard for and now probably will need to go back to the darn PEG feedings again. Im struggling to swallow chicken and stars soup. Also Im back to my 3000 calorie chocolate peanutbutter milkshakes too, at least my taste is here so I know what tastes good. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |