OP  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Ive done the tongue depressors, can only get 2 in. I also do all kinds of jaw exercises. Im starting to work with a speech therapist and soon the physical therapist. Im hoping they will help me to make progress with the therabite. Im pretty much going from doctor to doctor trying to find someone who will 'fix' me.
I need extensive dental work. I have done HBO which has helped significantly with fatigue and pain. Once I am able to open my mouth then I can get my dental work completed.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
