 Platinum Member (200+ posts)
Joined: Sep 2008 Posts: 250 | Mike,
Wow! I haven't heard of anything for the children of OC patients, but it's definitely something that should be thought about.
My sons are all grown, but my grandchildren were only 4 and 8 when all this started, and we are very close. When they came to visit me after my second surgery - feeding tube down my nose, trach hole in my neck, toothless, etc, I asked their parents to prepare them so that they wouldn't be too frightened when they saw their beloved Gramma. They did a pretty good job of explaining and the kids filled in any gaps with questions when they got here.
Maybe the American Cancer Soc. has some info on that. I've found that they've been pretty good about including the family as a unit.
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
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