Diane,

As Sharifah said, please be very careful. Your Doc might be absolutely right, and I very sincerely hope he is, but if you read my intro post of a few days ago, the 21st, you'll see that you need to watch and act immediately if anything seems "off". I don't want to scare you or take the wind out of your sails, but I cringe every time I hear someone tell, or see someone write, what seems so close to the beginning of my story.

I'm almost 2 yrs post treatment of my recurrence and I'm doing well under the circumstances, but I now know that I absolutely should have received radiation after my first surgery. I know this not only because of the extremely fast and furious recurrence, but because my Docs at Shands were visibly surprised when I told them that my local ENT hadn't ordered it.

Again, I hope with all my heart that your Doc is right, but do be careful.

Lani


SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08