I had it twice but 2nd time was on the other side of my tongue. Personally, I believe that the right side cancer (2nd one) was there at the time they did the first surgery as I remember complaining about the pain on the right side as well but people just listened politely and blamed it on something else. But anyway...

I've had it twice now, 2 surgeries, 2 bouts of radiation and just went thru another round of tests. I too always like to know that there is SOMETHING that can be done. This last time I said...okay....what if it is???? MO said we're not without options - surgery perhaps chemo?? So who knows what they might do IF...., but it is great to know that there are at least options to consider.

I have about 1/8 of my original tongue and apparently I speak like someone who is deaf, but I CAN speak. I am back to eating well (too well??) and while I do have to stick to a somewhat limited diet of softer foods, it seems a very small price to pay. I can't address the singing issue as I never could sing but I'm sure this is a great loss for you, but like the eating issue, there is no question that we all have to make huge adjustments in our new normal to deal with this cancer. Hopefully along the way we can stop to count our blessings as well as our losses.

Don't be terrified of radiation..you get thru it one treatment at a time and we are all here for you. Soon you will be wondering what you were terrified about!

Donna