Hi Everyone, its Lyn. Sorry I havent been around lately but between appointments and more appointments I just keep running out of time. Everyone seems to know whats BEST for me. Whats BEST for me is to see the end of this stupid disease mnot just for me for all of us! THAT is whats best!

I have a question. As some of you know I had tongue cancer and lost about, eh..40% of my tongue...(yep it was replaced by a flap from my inner left wrist - no Im no a hairy person so no, my tongue isnt hairy and I dont have to shave it nor do I wear my watch on my tongue!) Just though Id get those out of the road before moving onto business. smirk Seriously, today I had a biopsy taken from a lump that has appeared on (kinda underneath) my free flap near where it joins my normal tongue. I am worried that if it is cancer NOW WHAT DO THEY DO TO ME???? I would really just like to know the options. Its only been there for a few days but although I finished radio in Feb the ulcers have remained...kinda like a constant party in my mouth, as the little rats move around AND they vary in size and shape...and Im not invited to the parties. I know this as I am having NO fun during them (most of the time.gggggrrrrr! So, I have been in constant varying degres of pain since my op (Nov last year) Im still using mouth wash, still on heary painzappers (personally I feel the mouthwashes work better if I hold them in for as long as I can. Esp. the cocaine one) and anti anxiety pills. Anyway, has anyone here had cancer twice on their tongue and if so, what treatment/s did you have and ...wow....I have so many questions It would probably be better if you emailed me if you are out there instead of me boring everyone else on here with my tongue of woe! Needless to say I am not a happy camper tonight and I am really scared I am going to lose more tongue...and if so...what are the consequences. Do I eat soup forever and speak like someone with a soccerball in their mouth? This is all made worse...far worse...by the fact that I am/was/will work hard to be one again/nearly was again/ a Singer and I was almost at the point of performing again...NOW THIS HAPPENS!!! I am not so sure I have it in me to go through the last 8 months again to be told I am gonna die anyway (which I am ok with). I would appreciate anything anyone can offer. Please dont think Im rude if I dont reply its really late here (Aussie) and Im off to bed Hope you are all doing better than me tonight! Love Lyn sleep

Tongue Cancer SCC Removal of 2/3 of right side tongue, neck disection-34 lymph nodes removed. flap for new tongue made from left wrist in 2007. Now (mid 2011) speech has been back to normal since early 2009, and Im back working as a singer. So far so good!
2016... Still cancer free! Yay.