Delia,
Being that Fentanyl is 40 times more powerful than heroin, my personal opinion is that the sudden downsizing of the dose could have had worse side effects than he had, convulsions and death come to mind. What did you they give you - a 1st year medical student - or worse yet a PDA (actually some PDA's are knowledgeable than some doctors)?

Everyone one has previously given the appropriate suggestions so I won't revisit it but my personal opinion (again) is that the doctors were highly irresponsible and dangerous in their withdrawal plan(and I use that term loosely) and if it were me, I would rattling some cages (at least the hospital omsbudsman, head of of the department or a personal injury attorney).

And why all the CT's? Why not MRI's. He doesn't need all of that extra radiation (1 CT is = to 6 years of normal background radiation). MRI's do exquisute soft tissue examination and are my CCC's followup scan of choice.

About the PET, I never got 1 followup PET, let alone 2 in such a short time period.

He's not being treated at CTCA or some funky outfit like that is he? (I love their disclaimer, in small print on their TV add, from a couple of survivors "...not all patients have this outcome") - *no shit!!! (*comment added)

Quackwatch LOVES those idiots. http://www.quackwatch.org/search/webglimpse.cgi?ID=1&query=CTCA

YOU must be his advocate. ALL of the information that you need, to be that, is here on this site (whether the forum or the home page). You must be prepared, in advance, and have the appropriate knowledge and written set of questions and challenges BEFORE they start some questionable procedure. Reporting to us afterwards are great warnings for patients to come but are not helping Charlie in real time when he needs it most. You must step up and be more proactive.