Anne:

Has your PEG tube been loosened? My tube has that same type of guard and it was too tight. Once the doctor loosened it, I instantly felt releif. When was the last time you saw this doctor? You need to go back, if you call and the receptionist doesnt get you in right away, tell them what you wrote here. Let them know you need to be seen right away that you have some major problems with it.

The tube can get red around the site. I put some antibiotic cream around the tube site and cover it with gauze, that might help.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile